The system?s broken? and here?s how to fix it

Yesterday, I was not happy. I?d been talking to a major funder, trying to find out more about whether we could apply for funding for our fast moving scientific research and upcoming clinical trials for Alkaptonuria (AKU), the rare genetic disease affecting my two sons. The funder was very helpful in explaining the different funding [...]

Source: http://www.rarediseaseblogs.net/2011/07/22/the-system%e2%80%99s-broken-and-here%e2%80%99s-how-to-fix-it/

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