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pondelok 31. októbra 2011
Rare diseases are an example of the need for more Europe today
After the impact on Europe of the US financial crisis two years ago, the EU is now shaken by a new crisis, a crisis of the Euro spurred by the public deficit of Member states. The future of EU is at stake, at least in its vision as a political space for peace, economic growth [...]
How to Periodize Your Nutrition Plan
We’ve all likely heard of the concept of periodization with respect to planning our exercise programs. For those who haven’t, periodization is the systematic variation in volume and intensity of exercise in order to reach a high level of performance at the right time of the year. Originally developed by Dr. Tudor Bompa to allow rowers to “peak” during the most important competition of the year, the common exerciser can…
Read the rest »How to Periodize Your Nutrition Plan is a post from TweakFit. TweakFit is a fitness blog dedicated to helping people get healthy and fit through proper exercise, nutrition, and injury maintenance.
Make sure you consult your doctor before attempting anything mentioned on this blog post.
Copyright © TweakFit 2009-2011. Terms of Use.
Source: http://feedproxy.google.com/~r/TweakFit/~3/BUbNO5i4BRk/how-to-periodize-your-nutrition-plan
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How to Periodize Your Nutrition Plan
We’ve all likely heard of the concept of periodization with respect to planning our exercise programs. For those who haven’t, periodization is the systematic variation in volume and intensity of exercise in order to reach a high level of performance at the right time of the year. Originally developed by Dr. Tudor Bompa to allow rowers to “peak” during the most important competition of the year, the common exerciser can…
Read the rest »How to Periodize Your Nutrition Plan is a post from TweakFit. TweakFit is a fitness blog dedicated to helping people get healthy and fit through proper exercise, nutrition, and injury maintenance.
Make sure you consult your doctor before attempting anything mentioned on this blog post.
Copyright © TweakFit 2009-2011. Terms of Use.
Source: http://feedproxy.google.com/~r/TweakFit/~3/BUbNO5i4BRk/how-to-periodize-your-nutrition-plan
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Don?t Bonk: Race Day Nutrition Tips
Once you’ve done all the training, tapered appropriately, and show up at the start line, there are two critical areas on which to focus that will maximize race performance for distance runners, particularly for races 13.1 miles or longer. The first is executing your race strategy.� It’s easy to get caught up in the excitement of race day.� Adrenaline is flowing and the thrill of competition drives us to outperform…
Read the rest »Don’t Bonk: Race Day Nutrition Tips is a post from TweakFit. TweakFit is a fitness blog dedicated to helping people get healthy and fit through proper exercise, nutrition, and injury maintenance.
Make sure you consult your doctor before attempting anything mentioned on this blog post.
Copyright © TweakFit 2009-2011. Terms of Use.
Source: http://feedproxy.google.com/~r/TweakFit/~3/b_HjwVYEITw/dont-bonk-race-day-nutrition-tips
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2011 Canavan Research Summit Synopsis
By Dr. Paola Leone This year marked the second Canavan Research Summit, where 40 of the world?s top scientists gathered to share data addressing Canavan disease pathology, diagnosis and potential treatments. The 2011 Canavan Research Summit was chaired by Paola Leone, PhD, and Darryl De Vivo, MD and took place in Harrison, New York on [...]
Source: http://jacobscure.org/blog/2011/07/05/2011-canavan-research-summit-synopsis/
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IBD in Triangle Business Journal
Lee Weisbecker wrote an interesting article on our company’s founder, Jim Price.� See the article published in the January 9th, 2009 paper.
Source: http://feedproxy.google.com/~r/IBDInsurance/~3/wVocxK0kL9w/
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Managing Asthma and Living a ?Normal? Life
I’ve noticed that there are many people with asthma who seek information, but some people are rather complacent about it. As an asthma specialist, are you concerned that some asthmatics may not be doing all they can to manage their illness? Dr. Shapiro: Oh, yes, it’s a major problem! As I was saying, people should [...]
Source: http://feedproxy.google.com/~r/AutoimmuneDiseasesBlog/~3/lsj4rEVWNRY/
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How to Educate School Personnel When Your Child Has Asthma
Andrew: You’ve mentioned about other people who work with a child – teachers and school nurses and others. Let’s talk about that for just a second. So, the parent and the child get comfortable with a treatment plan, and recognize that asthma can be under control. But certainly there are asthma flare-ups, and there are [...]
Source: http://feedproxy.google.com/~r/AutoimmuneDiseasesBlog/~3/Zhl0TxMWrmQ/
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Endometriosis
This is a condition in which fragments of endometrium, the tissue which lines the uterus, migrate to other parts of the body and become implanted there. In effect, the displaced tissue acts very much like a miniature uterus in a place where it has no business to be.
Under the influence of ovarian hormones, the displaced [...]
Under the influence of ovarian hormones, the displaced [...]
Source: http://www.diseasesblog.org/kidney-and-urinary-disorders/endometriosis
Do we need to rebrand rare diseases?
I came home late from London last night. We?d just had a brainstorm with a group of friends to think about how to build a strong rare disease movement in the UK. As you?ll see from my previous posts, I?m convinced that more can be done to create a mass social movement for rare diseases [...]
Source: http://www.rarediseaseblogs.net/2011/10/05/do-we-need-to-rebrand-rare-diseases/
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Diet-to-Go Meal Delivery Service: Is it the Right Fit For You??
Some of the biggest obstacles to eating healthy and losing weight can be time! As a Registered Dietitian, I hear it time after time: not enough time to grocery shop, not enough time to portion out foods, and not enough time to create healthy and tasty meals that are not repetitive and boring. Finally, a solution! After reviewing many meal delivery programs, I have discovered one that fits the bill…
Read the rest »Diet-to-Go Meal Delivery Service: Is it the Right Fit For You?? is a post from TweakFit. TweakFit is a fitness blog dedicated to helping people get healthy and fit through proper exercise, nutrition, and injury maintenance.
Make sure you consult your doctor before attempting anything mentioned on this blog post.
Copyright © TweakFit 2009-2011. Terms of Use.
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The 2011 Canavan Research Summit & Family Conference Video
Our Jacob’s Cure Canavan Research Summit & Family Conference, held on June 3-5, 2011 brought together researchers and families. The researchers were able to learn from and be inspired by the families, and the families were given hope after learning of new treatments on the horizon.� Jacob’s Cure would like to say a big thank [...]
Source: http://jacobscure.org/blog/2011/09/09/the-2011-canavan-research-summit-family-conference-video/
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Your Child?s Asthma Management Plan at School
Erin: So, [the asthma management plan] includes triggers, medications, and allergies, I would imagine. Now, then you send your child off to school, and there they are spending their majority of their time now away from you. How can you deal with their asthma management plan? What happens when you take it to school? Nancy: [...]
Source: http://feedproxy.google.com/~r/AutoimmuneDiseasesBlog/~3/hWIJsr-pgn8/
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Perspectives on treating a rare disease
We?ve just finished our fourth international conference on AKU (Alkaptonuria), here in Cambridge. It was a huge success, although it raised, once again, the questions we face as we work to find treatments for rare diseases.
Sixty scientists, industry representatives, patients and relatives attended, including from the US, Slovakia, Jordan, France, Italy, the UK, the Netherlands, [...]
Sixty scientists, industry representatives, patients and relatives attended, including from the US, Slovakia, Jordan, France, Italy, the UK, the Netherlands, [...]
Source: http://www.rarediseaseblogs.net/2011/01/19/perspectives-on-treating-a-rare-disease/
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nedeľa 30. októbra 2011
The Art of the Pre-Competition Meal
Have a big competition coming up? Or are you simply an active person and want to eat in a way that will provide a maximum amount of energy for the day? For optimal energy, you need to master the art of the pre-competition meal. Much of the pre-competition meal is common sense, but some popular misconceptions exist as well. Follow these guidelines to have your body ready to perform at…
Read the rest »The Art of the Pre-Competition Meal is a post from TweakFit. TweakFit is a fitness blog dedicated to helping people get healthy and fit through proper exercise, nutrition, and injury maintenance.
Make sure you consult your doctor before attempting anything mentioned on this blog post.
Copyright © TweakFit 2009-2011. Terms of Use.
Source: http://feedproxy.google.com/~r/TweakFit/~3/7-2oOIZFHUQ/the-art-of-the-pre-competition-meal
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Last Chance to Be Coached by America?s Natural Doctor
* IMPORTANT and TIME SENSITIVE * Dr. Mark Stengler’s much anticipated one-of-a-kind “High Energy�for Life” program starts TOMORROW! With over 700,000 views of his 4 ‘mini’ videos, thousands have�been lining up to get their family full access to his complete�natural solutions program! >> In a hurry? Click here for complete details This is your [...]
Source: http://www.thehealthblog.com/coached-by-americas-natural-doctor/
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Is it Necessary to Use Medication Long-term for Asthma?
Gina: The goal for a parent often seems to be, in any kind of medical issue, to not have to do any medication. With asthma, is there any reason to avoid medication if it’s working, and is it really necessary to stay on it long-term? Dr. Redding: The hardest concept that people and families deal [...]
Source: http://feedproxy.google.com/~r/AutoimmuneDiseasesBlog/~3/jsVMIE2LLc4/
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Electronic Cigarette ? New Creation of This Century
There is a new alternative to stop-smoking helpers. Now you can try out so called ?electronic cigarette?. What is it? Does it help to give up smoking or not? Let?s find out the answer. This invention as electronic cigarette has appeared on the market three years ago. It is an efficient device which main aim [...]
Source: http://20words.org/180/stop-smoking/electronic-cigarette-new-creation-of-this-century.html
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Caring for Jacob: A Mother?s Day Story
By Jordana Holovach This piece was originally printed in the Jewish Weekly, May 15, 2006.� Jacob turned 15 this past February. Mothers will be showered with adoration this weekend, from breakfast in bed to dinners they did not cook. Flowers will be plentiful and children will do something extra special to show their moms how [...]
Source: http://jacobscure.org/blog/2011/05/09/caring-for-jacob-a-mothers-day-story/
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Home tennis elbow remedies
There are many people who do not know what it is a tennis elbow. It is a condition that causes a nagging pain in your elbow. It usually affects the sportsmen, pianists, house painters, masons, golf players, tennis players of course, masseurs, blacksmiths and other people whose professional life is connected with frequent use of [...]
Source: http://20words.org/156/health-issues/home-tennis-elbow-remedies.html
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Quick home remedy for heartburn
There are some moments when we do not look after ourselves what we eat. But this greatly influences on our stomach. If you have problems such gastritis then after eating bad food you will feel soon heartburn in your throat. You can not think of anything as to use some quick home remedy for heartburn [...]
Source: http://20words.org/158/health-issues/quick-home-remedy-for-heartburn.html
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Can I Double My Intake of Flovent During the Cold and Flu Season?
Kathy: I take Flovent and Serevent daily for asthma. I have a problem with all the viruses – cold and flu – come fall and winter, and I would like to get through this year without a flare-up. It has been suggested not to increase the Flovent unless there is a drop in peak flow. [...]
Source: http://feedproxy.google.com/~r/AutoimmuneDiseasesBlog/~3/yE7oQD45Tu0/
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Headaches and Migraine
Next to pain, headache is probably the most common symptom to affect man�kind. There is hardly a grown person who at one time or another has not experienced mild or severe headaches, for which most people take aspirin or a similar compound because it is often effective and does not require a doctor’s prescription.
People of [...]
People of [...]
Source: http://www.diseasesblog.org/brain-disorders/headaches-and-migraine
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A National Conference on Rare Disorders in Cyprus
The Cyprus Alliance for Rare Disorders (C.A.R.D.) is a non-governmental, non-profit organisation t founded in Nicosia, Cyprus in June 2010. Its founding members include the Cyprus Muscular Dystrophy Association, Cyprus Adult Congenital Heart Defects Association- Cyprus, Cyprus Association for the Protection of Spastic and Handicapped Children, Parents Association of Spastic and Handicapped Children, Cyprus Primary [...]
Source: http://www.rarediseaseblogs.net/2011/02/21/a-national-conference-on-rare-disorders-in-cyprus/
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Perspectives on treating a rare disease
We?ve just finished our fourth international conference on AKU (Alkaptonuria), here in Cambridge. It was a huge success, although it raised, once again, the questions we face as we work to find treatments for rare diseases.
Sixty scientists, industry representatives, patients and relatives attended, including from the US, Slovakia, Jordan, France, Italy, the UK, the Netherlands, [...]
Sixty scientists, industry representatives, patients and relatives attended, including from the US, Slovakia, Jordan, France, Italy, the UK, the Netherlands, [...]
Source: http://www.rarediseaseblogs.net/2011/01/19/perspectives-on-treating-a-rare-disease/
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How to Educate School Personnel When Your Child Has Asthma
Andrew: You’ve mentioned about other people who work with a child – teachers and school nurses and others. Let’s talk about that for just a second. So, the parent and the child get comfortable with a treatment plan, and recognize that asthma can be under control. But certainly there are asthma flare-ups, and there are [...]
Source: http://feedproxy.google.com/~r/AutoimmuneDiseasesBlog/~3/Zhl0TxMWrmQ/
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Fast, Filling & Flavorsome Protein Shake Recipes
People are often confused when I tell them that I am a Registered Dietitian and a bartender. While I first got into the bar industry to help support myself through college and my dietetic internship, I found that my creativity and passion for nutrition, actually helped me to create healthier and creative drinks for my customers. At my nutrition job at Devon Fitness Club, located in Berwyn, Pennsylvania, there…
Read the rest »Fast, Filling & Flavorsome Protein Shake Recipes is a post from TweakFit. TweakFit is a fitness blog dedicated to helping people get healthy and fit through proper exercise, nutrition, and injury maintenance.
Make sure you consult your doctor before attempting anything mentioned on this blog post.
Copyright © TweakFit 2009-2011. Terms of Use.
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sobota 29. októbra 2011
Perspectives on treating a rare disease
We?ve just finished our fourth international conference on AKU (Alkaptonuria), here in Cambridge. It was a huge success, although it raised, once again, the questions we face as we work to find treatments for rare diseases.
Sixty scientists, industry representatives, patients and relatives attended, including from the US, Slovakia, Jordan, France, Italy, the UK, the Netherlands, [...]
Sixty scientists, industry representatives, patients and relatives attended, including from the US, Slovakia, Jordan, France, Italy, the UK, the Netherlands, [...]
Source: http://www.rarediseaseblogs.net/2011/01/19/perspectives-on-treating-a-rare-disease/
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Electronic Smokeless Cigarette ? New Alternative
Many decades ago people become aware of harmful effects of smoking. Some started struggling with this nasty problem, some didn?t even try. Today we have a great option to the harmful cigarettes it is electronic smokeless cigarette. Are they good or bad? There is no exact answer to this. Some people say it really works. [...]
Source: http://20words.org/163/stop-smoking/electronic-smokeless-cigarette-new-alternative.html
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How do I qualify for the Inclusive Health plan?
The new Inclusive Health plan (also known as the North Carolina Health Insurance Risk Pool, the high risk pool, or North Carolina guarantee issue plan) is an individual health insurance plan for North Carolinians who do not have access to an employer health plan and face higher premiums for individual insurance due to a pre-existing [...]
Source: http://feedproxy.google.com/~r/IBDInsurance/~3/JdP_U0ZvXVk/
Epilepsy and the Regarding Precautions
Epilepsy has been known from antiquity but our understanding of it has developed only in the past century. When it appears, the family may not only be perplexed by the illness but confused by Cradictory information about it. An understanding of what it is, what its problems are, and what can and should be about [...]
Source: http://www.diseasesblog.org/kidney-and-urinary-disorders/epilepsy-and-the-regarding-precautions
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Enzyme Replacement Therapy as New Treatment for Canavan Disease
Jacob’s Cure and the Canavan Research Foundation have recently teamed up to co-fund a new project exploring the application of Enzyme Replacement Therapy for Canavan Disease. The research project is being led by Dr. Reuben Matalon of the University of Texas Medical Branch and Dr. Ronald Viola of the University of Toledo. Dr. Matalon was [...]
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14 Recipes for Homemade Healthy High Protein Low Carb Snacks
Lately, I’ve been on a search for a healthy high protein snacks that also contains low carb content to satisfy snack cravings on my rest days (days where I eat primary fats and protein and < 100g of carbs total). After dilly-dallying on the internet for a while, I stumbled upon�PROTEIN POW(D)ER, an awesome site with tons and tons of homemade recipes for making real food with the addition of…
Read the rest »14 Recipes for Homemade Healthy High Protein Low Carb Snacks is a post from TweakFit. TweakFit is a fitness blog dedicated to helping people get healthy and fit through proper exercise, nutrition, and injury maintenance.
Make sure you consult your doctor before attempting anything mentioned on this blog post.
Copyright © TweakFit 2009-2011. Terms of Use.
Source: http://feedproxy.google.com/~r/TweakFit/~3/hnQrSJr7x3M/homemade-healthy-high-protein-low-carb-snacks
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Aggressive Asthma Treatment Needed ? to Prevent Airway Remodeling
Andrew: There are many people who avoid taking medications when they don’t have active symptoms and feel that they are better off. I understand you experts now say that my not be necessarily true. Dr. Lanier: We used to think when people had asthma but weren’t wheezing, that they were okay, that asthma was just [...]
Source: http://feedproxy.google.com/~r/AutoimmuneDiseasesBlog/~3/0vaU-MVgwLY/
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12th International Conference on Thalassaemia and Hemoglobinopathies and the 14th TIF International Conference for Patients and Parents
Date: 11?14 May 2011
Venue: Antalya, Turkey
TIF?s largest and longest-established international event for medical professionals, scientists, patients and parents is the biennial International Conferences on Thalassaemia & Haemoglobinopathies, organised jointly with the TIF International Thalassaemia Patients/Parents? Conference, which attracts hundreds of delegates from all corners of the world. TIF has had impressive results over the [...]
Venue: Antalya, Turkey
TIF?s largest and longest-established international event for medical professionals, scientists, patients and parents is the biennial International Conferences on Thalassaemia & Haemoglobinopathies, organised jointly with the TIF International Thalassaemia Patients/Parents? Conference, which attracts hundreds of delegates from all corners of the world. TIF has had impressive results over the [...]
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Two Unique Cases of Canavan Disease
Did you know that the severity of Canavan disease can vary from child to child? For example, one of our kids, Lily, has a very mild form of the disease. You would never know from looking at her that she is anything but perfectly healthy, and if it wasn’t for her seizures, she might never [...]
Source: http://jacobscure.org/blog/2011/08/29/a-unique-case/
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Get Blue Advantage coverage faster than ever before!
Blue Cross and Blue Shield of North Carolina recently announced a major change in how fast Blue Advantage policies can be issued. Now, thanks to a proprietary automated underwriting system, Blue Advantage policies can be issued in as little as seven days! Blue Cross and Blue Shield of North Carolina’s new guidelines state that if [...]
Source: http://feedproxy.google.com/~r/IBDInsurance/~3/4pNDXxf0x6U/
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Improve Your Memory Now
If you have trouble recalling people’s names… or if you’ve ever felt absent-minded or forgetful… then you’ll definitely want to watch this free video that shows you how to improve your memory now. When we have mental clarity, life is easier. We’re more productive, relationships improve, and we’re just plain happier. One of my passions [...]
Source: http://www.thehealthblog.com/improve-your-memory-now/
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Comparing Orphan and Non-Orphan Clinical Trials
A recent article published in the Journal of the American Medical Association (JAMA) discussed a comparison of clinical trials for orphan vs. non-orphan oncology drugs.� The article questioned whether safety and efficacy standards were as stringent in the orphan trials as in the non-orphan trials.� A news story circulated after the article was published went [...]
Source: http://www.rarediseaseblogs.net/2011/06/13/comparing-orphan-and-non-orphan-clinical-trials/
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Thank you for your comments!
IBD would like�to thank our visitors for visiting our Blog and for making their comments!��Recently, we have made�some changes to our blog and are just now getting the hang of writing articles and moderating the comments from our visitors.�
We encourage our guests to comment on our articles!� However, we do ask that comments be positive, [...]
We encourage our guests to comment on our articles!� However, we do ask that comments be positive, [...]
Source: http://feedproxy.google.com/~r/IBDInsurance/~3/oNrbrr6dkzc/
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The 2011 Canavan Research Summit & Family Conference Video
Our Jacob’s Cure Canavan Research Summit & Family Conference, held on June 3-5, 2011 brought together researchers and families. The researchers were able to learn from and be inspired by the families, and the families were given hope after learning of new treatments on the horizon.� Jacob’s Cure would like to say a big thank [...]
Source: http://jacobscure.org/blog/2011/09/09/the-2011-canavan-research-summit-family-conference-video/
Is it Necessary to Use Medication Long-term for Asthma?
Gina: The goal for a parent often seems to be, in any kind of medical issue, to not have to do any medication. With asthma, is there any reason to avoid medication if it’s working, and is it really necessary to stay on it long-term? Dr. Redding: The hardest concept that people and families deal [...]
Source: http://feedproxy.google.com/~r/AutoimmuneDiseasesBlog/~3/jsVMIE2LLc4/
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Easy Home Remedies for Psoriasis
Psoriasis is a condition in which the body produces skin cells too quickly. The skin cells surface and build up, forming red patches which may look scaly. The exact cause of psoriasis is unknown. However, it is thought that the immune system is responsible and causes the skin condition when it mistakes healthy cells for [...]
Source: http://20words.org/168/psoriasis-treatment/easy-home-remedies-for-psoriasis.html
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piatok 28. októbra 2011
Your Child?s Asthma Management Plan at School
Erin: So, [the asthma management plan] includes triggers, medications, and allergies, I would imagine. Now, then you send your child off to school, and there they are spending their majority of their time now away from you. How can you deal with their asthma management plan? What happens when you take it to school? Nancy: [...]
Source: http://feedproxy.google.com/~r/AutoimmuneDiseasesBlog/~3/hWIJsr-pgn8/
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Football Strength Training Workouts for Men
Strength training workouts are important components of any sport, but is particularly crucial in football. With the life expectancy of a football player who has played in the NFL for at least three years being more than ten years younger than the national average, having sufficient strength is essential not just for performance, but to protect from injury. All positions in football require strength, but football strength training workouts vary…
Read the rest »Football Strength Training Workouts for Men is a post from TweakFit. TweakFit is a fitness blog dedicated to helping people get healthy and fit through proper exercise, nutrition, and injury maintenance.
Make sure you consult your doctor before attempting anything mentioned on this blog post.
Copyright © TweakFit 2009-2011. Terms of Use.
Source: http://feedproxy.google.com/~r/TweakFit/~3/Q7wlHUiVlB8/football-strength-training-workouts-for-men
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Endocarditis ? The Inflammation of The Heart Lining
What do doctors call this condition?
Endocarditis, infective endocarditis, bacterial endocarditis
What is this condition?
Inflammation of the heart lining is an infection of the endocardium, heart valves, or a valve prosthesis, resulting from bacteria or fungi.
The infection produces vegetative growths on the heart valves, the lining of a heart chamber, or the inside lining of a blood [...]
Endocarditis, infective endocarditis, bacterial endocarditis
What is this condition?
Inflammation of the heart lining is an infection of the endocardium, heart valves, or a valve prosthesis, resulting from bacteria or fungi.
The infection produces vegetative growths on the heart valves, the lining of a heart chamber, or the inside lining of a blood [...]
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How to Educate School Personnel When Your Child Has Asthma
Andrew: You’ve mentioned about other people who work with a child – teachers and school nurses and others. Let’s talk about that for just a second. So, the parent and the child get comfortable with a treatment plan, and recognize that asthma can be under control. But certainly there are asthma flare-ups, and there are [...]
Source: http://feedproxy.google.com/~r/AutoimmuneDiseasesBlog/~3/Zhl0TxMWrmQ/
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Endocarditis ? The Inflammation of The Heart Lining
What do doctors call this condition?
Endocarditis, infective endocarditis, bacterial endocarditis
What is this condition?
Inflammation of the heart lining is an infection of the endocardium, heart valves, or a valve prosthesis, resulting from bacteria or fungi.
The infection produces vegetative growths on the heart valves, the lining of a heart chamber, or the inside lining of a blood [...]
Endocarditis, infective endocarditis, bacterial endocarditis
What is this condition?
Inflammation of the heart lining is an infection of the endocardium, heart valves, or a valve prosthesis, resulting from bacteria or fungi.
The infection produces vegetative growths on the heart valves, the lining of a heart chamber, or the inside lining of a blood [...]
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Intussusception in Infants ? Symptoms and Treatment
This is a very serious condition most commonly seen in children under the age of two (the average age is seven months). It is caused by one portion of the intestine pushing inside the next segment. The pressure of the outside intestine compresses the blood vessels of the inner loop, cutting off the local blood [...]
Source: http://www.diseasesblog.org/blood-disorders/intussusception-in-infants-symptoms-and-treatment
The 2011 Canavan Research Summit & Family Conference Video
Our Jacob’s Cure Canavan Research Summit & Family Conference, held on June 3-5, 2011 brought together researchers and families. The researchers were able to learn from and be inspired by the families, and the families were given hope after learning of new treatments on the horizon.� Jacob’s Cure would like to say a big thank [...]
Source: http://jacobscure.org/blog/2011/09/09/the-2011-canavan-research-summit-family-conference-video/
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Enzyme Replacement Therapy as New Treatment for Canavan Disease
Jacob’s Cure and the Canavan Research Foundation have recently teamed up to co-fund a new project exploring the application of Enzyme Replacement Therapy for Canavan Disease. The research project is being led by Dr. Reuben Matalon of the University of Texas Medical Branch and Dr. Ronald Viola of the University of Toledo. Dr. Matalon was [...]
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Goals for Treatment of Asthma
Rick: Dr. Stempel, can you talk a bit about what doctors hope to achieve in the treatment of asthma? Dr. Stempel: We know of asthma and we talk about asthma as being an inflammatory condition in which there is swelling in the airways, and we have very specific drugs that we use to treat this [...]
Source: http://feedproxy.google.com/~r/AutoimmuneDiseasesBlog/~3/RpymVvFzjZ8/
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Electronic cigarettes as best alternative to quit smoking
The bad effects of the smoking are known by everyone. But still there are some people who are not ready to quit smoking. These kinds of people basically lack the will power which is required for getting rid of this dangerous habit. If you have the will power and the confidence and the [...]
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Different Types of Grow Taller Exercises
While many people think that height is determined by genetics, this is only partially true. Growth hormones play an important part into our overall height. At any given point in our lives, the body may decrease its production of growth hormones due to age, poor diet or lack of exercise. There are many grow taller [...]
Source: http://20words.org/178/health-issues/different-types-of-grow-taller-exercises.html
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12th International Conference on Thalassaemia and Hemoglobinopathies and the 14th TIF International Conference for Patients and Parents
Date: 11?14 May 2011
Venue: Antalya, Turkey
TIF?s largest and longest-established international event for medical professionals, scientists, patients and parents is the biennial International Conferences on Thalassaemia & Haemoglobinopathies, organised jointly with the TIF International Thalassaemia Patients/Parents? Conference, which attracts hundreds of delegates from all corners of the world. TIF has had impressive results over the [...]
Venue: Antalya, Turkey
TIF?s largest and longest-established international event for medical professionals, scientists, patients and parents is the biennial International Conferences on Thalassaemia & Haemoglobinopathies, organised jointly with the TIF International Thalassaemia Patients/Parents? Conference, which attracts hundreds of delegates from all corners of the world. TIF has had impressive results over the [...]
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Can I buy Blue Cross and Blue Shield insurance without a Social Security number?
YES!
We have�had an�rise in the number�of clients recently that have been�shopping for individual health insurance that have run into problems because they do not have a Social Security number.�The�knowledgeable staff at IBD Insurance Services understand this and have a solution to this problem.
Blue Cross and Blue Shield of North Carolina (BCBSNC) will offer health insurance [...]
We have�had an�rise in the number�of clients recently that have been�shopping for individual health insurance that have run into problems because they do not have a Social Security number.�The�knowledgeable staff at IBD Insurance Services understand this and have a solution to this problem.
Blue Cross and Blue Shield of North Carolina (BCBSNC) will offer health insurance [...]
Source: http://feedproxy.google.com/~r/IBDInsurance/~3/mFNBvuHAyqw/
Days Off and Easy Miles Lead to Performance Gains
It’s a difficult concept to accept.� When I first started running, I thought I had to give 100% effort with every training run and run as many miles as I possibly could to realize fitness gains .� Now that I am a slightly more seasoned runner, I’ve come to learn the value of days off and the accumulation of easy miles.� Only the appropriate combination of challenging training runs coupled…
Read the rest »Days Off and Easy Miles Lead to Performance Gains is a post from TweakFit. TweakFit is a fitness blog dedicated to helping people get healthy and fit through proper exercise, nutrition, and injury maintenance.
Make sure you consult your doctor before attempting anything mentioned on this blog post.
Copyright © TweakFit 2009-2011. Terms of Use.
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štvrtok 27. októbra 2011
Simple yet Effective Hemorrhoid Home Treatment
When veins in or outside the anal canal become irritated, they may become swollen or burst. This can be incredibly painful, especially if the hemorrhoids are external. Not only are hemorrhoids a cause of pain, they are also a sign of poor bowel health. Even if your hemorrhoids are not painful, they should not be [...]
Source: http://20words.org/172/hemorrhoids-treatment/simple-yet-effective-hemorrhoid-home-treatment.html
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Diet-to-Go Meal Delivery Service: Is it the Right Fit For You??
Some of the biggest obstacles to eating healthy and losing weight can be time! As a Registered Dietitian, I hear it time after time: not enough time to grocery shop, not enough time to portion out foods, and not enough time to create healthy and tasty meals that are not repetitive and boring. Finally, a solution! After reviewing many meal delivery programs, I have discovered one that fits the bill…
Read the rest »Diet-to-Go Meal Delivery Service: Is it the Right Fit For You?? is a post from TweakFit. TweakFit is a fitness blog dedicated to helping people get healthy and fit through proper exercise, nutrition, and injury maintenance.
Make sure you consult your doctor before attempting anything mentioned on this blog post.
Copyright © TweakFit 2009-2011. Terms of Use.
50/50 and Neurofibrosarcoma
50/50, a film starring Seth Rogen and Joseph Gordon-Levitt based on the true story of Will Reiser who is a survivor from a battle against a rare cancer of the spine. // The Children's Tumor Foundation seeks to improve the health and well being of individuals and families affected by the neurofibromatoses (NF).
Source: http://marbleroad.wordpress.com/2011/10/17/5050/
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Perspectives on treating a rare disease
We?ve just finished our fourth international conference on AKU (Alkaptonuria), here in Cambridge. It was a huge success, although it raised, once again, the questions we face as we work to find treatments for rare diseases.
Sixty scientists, industry representatives, patients and relatives attended, including from the US, Slovakia, Jordan, France, Italy, the UK, the Netherlands, [...]
Sixty scientists, industry representatives, patients and relatives attended, including from the US, Slovakia, Jordan, France, Italy, the UK, the Netherlands, [...]
Source: http://www.rarediseaseblogs.net/2011/01/19/perspectives-on-treating-a-rare-disease/
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Simple yet Effective Hemorrhoid Home Treatment
When veins in or outside the anal canal become irritated, they may become swollen or burst. This can be incredibly painful, especially if the hemorrhoids are external. Not only are hemorrhoids a cause of pain, they are also a sign of poor bowel health. Even if your hemorrhoids are not painful, they should not be [...]
Source: http://20words.org/172/hemorrhoids-treatment/simple-yet-effective-hemorrhoid-home-treatment.html
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Improve Your Memory Now
If you have trouble recalling people’s names… or if you’ve ever felt absent-minded or forgetful… then you’ll definitely want to watch this free video that shows you how to improve your memory now. When we have mental clarity, life is easier. We’re more productive, relationships improve, and we’re just plain happier. One of my passions [...]
Source: http://www.thehealthblog.com/improve-your-memory-now/
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What can sociology teach us about the rare disease movement?
What are the key factors that could explain the rise of the rare disease movement and help us understand how to make it grow faster and more effectively?
A few years ago I finished my PhD in social movement studies, a sub-group of sociology that studies why social movements rise and fall. My PhD was on [...]
A few years ago I finished my PhD in social movement studies, a sub-group of sociology that studies why social movements rise and fall. My PhD was on [...]
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Fever and Ways of Treatment
The first thing for a parent to remember is that the degree of fever is no indication of the severity of an illness. Some minor illnesses, such as Roselle infantum, can be accompanied by a very high fever, whereas some very serious diseases, such as certain cases of diphtheria, may only have a low fever. [...]
Source: http://www.diseasesblog.org/brain-disorders/infections/fever-and-ways-of-treatment
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Rare diseases are an example of the need for more Europe today
After the impact on Europe of the US financial crisis two years ago, the EU is now shaken by a new crisis, a crisis of the Euro spurred by the public deficit of Member states. The future of EU is at stake, at least in its vision as a political space for peace, economic growth [...]
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Fever and Ways of Treatment
The first thing for a parent to remember is that the degree of fever is no indication of the severity of an illness. Some minor illnesses, such as Roselle infantum, can be accompanied by a very high fever, whereas some very serious diseases, such as certain cases of diphtheria, may only have a low fever. [...]
Source: http://www.diseasesblog.org/brain-disorders/infections/fever-and-ways-of-treatment
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Katy Perry, Julie Bowen, Sting?
The Jacob’s Cure bowling event to strike out Canavan disease is quickly approaching, and we have some incredible packages available in our silent auction. Some highlights include: A Hollywood package including set tours of Modern Family and Cougar Town, VIP tickets to “The Talk”, salon services at Joseph Martin, one night in a deluxe room [...]
Source: http://jacobscure.org/blog/2011/10/11/katy-perry-julie-bowen-sting/
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